Sebastian Velona has always been a source of happiness, energy, and humor. But after being diagnosed with Batten disease (CLN8), a rare and terrible genetic disorder, his colorful world started to get smaller.

The disease eventually made it impossible for Sebastian to walk, talk clearly, or even see. But he and his family never gave up.

When 21-year-old Sebastian Velona got to BioRecharge in Santa Clarita, he was completely dependent on a wheelchair, had lost almost all of his vision, and was having trouble talking. He only said a few words and made simple hand signals, like a thumbs-up. He was tired, his reactions were slow, and he was in a bad mood. He had 4 to 5 seizures every day. People who were close to him were scared that he was getting close to the end of his life.

The family behind Project Sebastian had been fighting for answers for years, and they didn’t think they would ever find them. But then they found the Energy Enhancement System (EESystem) at BioRecharge.

The change happened almost right away after Sebastian Velona started using the EESystem. This young man, who used to have trouble standing, was walking on a treadmill in just a few weeks. His hunger came back with full force. He started talking again, but slowly and steadily. There were smiles and laughter again. The most surprising thing was that his seizures went down a lot, to just three a month.

Every improvement gave us new hope. Faster responses, better coordination, and the return of his playful sense of humor—these moments reminded everyone that healing is still possible, even after years of decline. His progress sends a message to families who are fighting Batten disease: don’t give up.

Project Sebastian is still fighting for Sebastian’s rights, and BioRecharge in Santa Clarita is helping him get parts of his life back. The EESystem may not be able to cure Sebastian, but it has become an important part of bringing back what he thought was lost.

If the odds are against you, know that there are still options. BioRecharge is a safe and non-invasive place where cells can heal.

To help the cause, go to Project Sebastian.